An informed consent is the process of obtaining a patient’s approval for genetic testing, after the doctor or genetic counselor provides with detailed information regarding the test procedure, its risks and benefits. These details help the patient to decide whether to go ahead with the testing or not. The informed consent process is an integral part of the ethical treatment of human beings during research and is based on the ethical principle of respect for persons. The aim is to help the patient take a voluntary decision of participation, after knowing about the pros and cons of the procedure.
What does it mean if a disorder seems to ‘run in my family’?
When a disorder has affected more than one